For families and helper teams living with a rare diagnosis

One place to coordinate care - even when the condition is rare

A rare diagnosis often means complex care, many specialists, and a path no one has mapped before. LumaCare keeps the whole team aligned, medication on track, and the patterns that matter visible - all in one calm place.

Sign up before 30 Sep 2026 and get 30% off Family and Premium

Use code SJAELDNE at checkout

One place to coordinate care - even when the condition is rare
Sound familiar?

A rare diagnosis asks a lot of the people around it

Rare often means complex: few experts, little written down, and a care team that only works if everyone shares the same picture.

Care no one has mapped for youWith a rare condition there's often no standard playbook - you become the expert, and everything you learn has to be passed on.

A long list of specialistsDifferent departments, hospitals, and therapists - each holds a piece, and keeping them all on the same page falls to you.

Patterns that only show over timeSymptoms come and go. Without a way to look back over weeks, the trends that matter at the next appointment are easy to miss.

A helper team that needs the full pictureWhoever is on - family or paid helper - has to know the routines, the warning signs, and what to do when something is off.

Care that keeps up

Built around your situation - whatever the diagnosis

Track exactly what matters, keep every helper and specialist aligned, and see how things change over time - all in one shared place.

Track what matters

Track anything - there's no fixed template

Rare conditions rarely fit a standard form. Build your own event types with exactly the fields that matter - symptoms, seizures, pain, feeding, whatever your diagnosis demands - and import a ready-made starter pack to begin in seconds.

  • Design events with the fields that fit your situation - text, scales, dropdowns, photos
  • Import an extensive rare-diagnosis pack, then keep only what you need
  • Every helper logs the same way - so the record stays consistent
Track anything - there's no fixed template
Stay on top of doses

Medication everyone can keep track of

Complex regimens are easy to get wrong. Set each medication and its schedule once - helpers confirm doses with a tap, get reminders when one is due, and guardrails prevent accidental double-dosing. If a dose is missed, the family is alerted.

  • Reminders and one-tap confirmation for every scheduled dose
  • Missed-dose alerts escalate to a family member
  • A clear, shared history of exactly what was given and when
Medication everyone can keep track of
See how things change

See the patterns that are hard to spot

Every entry your helpers log builds a shared timeline. Ask in plain language - and let AI surface the changes in symptoms, sleep, and energy that are hard to see day to day, ready for the next appointment.

  • Ask plain-language questions about changes over weeks
  • Answers drawn only from your family's own private data
  • Bring a clear, organised record to every specialist
See the patterns that are hard to spot
Nothing lost between helpers

Every helper arrives already knowing what matters

When a shift ends, LumaCare turns the day's events into a clear, plain-language handover - so the next helper knows what happened, what changed, and what to watch for.

  • AI handover summaries the moment a shift ends
  • Routines, warning signs, and emergency steps live in care guides
  • The next helper sees everything since the last shift at a glance
Shift handover
AI Summary
Steady day. A little more tired than usual after lunch - worth watching. Ate and drank well with support. All medication given on time. No new symptoms.
Day shift · 8:00 – 16:00 6 events logged
A member benefit

A ready-made, extensive tracking pack to start from

Because rare diagnoses cover so much ground, we've built an extensive rare-diagnosis tracking pack you can import in one tap - then keep only the parts that fit your situation.

  • An extensive rare-diagnosis tracking pack, ready to import and trim to fit
Get started with the Family plan

This offer reaches you through Sjældne Diagnoser's own channels - LumaCare never receives or uses any member list.

Built on trust

Your family's data, handled with care

LumaCare handles sensitive health information the way it should be handled - privately, securely, and on European terms.

EU data residency

Your data is stored in European data centres - never sold, never shared.

GDPR & Article 9 compliant

Built privacy-first, with the extra protections that health data requires under GDPR Article 9.

Danish-language support

A Danish-built product with support in Danish, from people who understand everyday care.

Read our Privacy Policy →
And there's more

LumaCare grows with you

Once the everyday is set up, these tools are ready whenever you need them.

Shift Scheduling

Build the rota, assign helpers or open up shifts to be claimed, and let LumaCare flag coverage gaps before they become a problem.

Shift Scheduling
Expense Tracking

Snap a photo of a receipt and AI pulls out the merchant, date, and line items - categorised and ready to report.

Expense Tracking
Memories

Keep the moments that matter - photos, notes, and audio clips, gathered in one shared gallery the whole family can add to.

Memories
Driving Diary

Log every drive and LumaCare works out the mileage cost from your rate - then turns it into a transport expense, ready to export.

Driving Diary
Simple pricing

Choose the plan that fits your family

30% member discount applied for the first 12 months

Starter

Getting started with coordinated care

Free
  • Free features:
  • 1 care recipient
  • Up to 3 caregivers
  • Basic care event logging
  • Medical records & medications
  • Basic shift scheduling
  • Family chat
Get Started Free

Family

Full care coordination for growing families

€7.99 €5.59 / month
Save 30%
  • Everything in Starter, plus:
  • Custom care event types
  • Unlimited care recipients
  • Full scheduling
  • Expense tracking
  • Photo memories
Start Free Trial
Compare all plans and features

One calm place for complex, rare care

Keep the whole team aligned, medication on track, and the patterns that matter visible - so you can focus on the person you care for.

Get started with the Family plan